They say time flies when you’re having fun but apparently it also flies when you’re not!
Last year I was so aware of the significance of this date, I re-lived everything that happened in my mind over and over again, wondering if there was anything we could have done sooner, scrutinising all our actions and wondering if we asked the right questions.
This year the day just passed without any thought. I remember writing the date down somewhere and thinking it felt familiar but it wasn’t until later that day that it finally clicked.
This life is so ‘normal’ to us now that I honestly can’t remember what my life was like before Eleanor’s diagnosis. Having a child with a visual impairment is tough but it also makes you think outside of the box, challenges you and I truly believe it has made me a better version of myself. I won’t lie, I often wish things could be more simple for us. I’d love to have a more carefree outlook and not feel the blood drain from my body every time she gets a common bug. I’d love to be able to watch her run in the park or ride a scooter but our life is a different kind of ‘normal’ now.
The years ahead are so uncertain, as I have mentioned in previous posts now the chemotherapy protocol has ended we live 4 months at a time, in between scans, and hope we have a good chunk of time where her tumour remains stable.
The next scan is at the end of February, fingers crossed!
Happy New year everyone!